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Well this is my first visit with my family doctor I am not currently taking much medicine or anything just two baths daily but with summer just coming up I have bad sweats I am now starting get it on my face I have it bad under arms and under tummy in between my thighs I don't know what to do also is it considered a disability what type of help can I ask for on my first visit I currently don't take any birth control and I am scared to ask for help I wait at least a month for this appointment and… read more

May 9, 2023
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A myHSteam Member

Hi Starla! First of all, is your Doctor knowledgeable in HS? If so, you should tell her exactly how you feel and show her everywhere you have/had flares. If your doctor is not knowledgeable with HS, find a Dermatologist that is. HS is a progressive disease and it seems like you are at the stage to get disability due to your pain and inability to move. You should put in an application over the phone. If they deny you, Appeal ! I hope this helps you Sweetheart. Take care and be blessed.

May 9, 2023 (edited)
A myHSteam Member
May 13, 2023
A myHSteam Member
May 13, 2023
A myHSteam Member
May 13, 2023
A myHSteam Member

Do your best to show the doc your thighs so they know exactly what you're dealing with. You can ask about a referral to a dermatologist who knows about HS if you think this doctor doesn't know enough. As for medications to try, there is hormonal birth control, there's spironolactone, there's trying a bunch of different antibiotics (either daily as a pill or as a lotion you put on a flare), there's Humira. Lots of options. So ask for help finding a medication that will reduce the number of flares you get, and then ask what to use when you get a flare.
HS can definitely be considered disabling if it prevents you from being able to work. I have never applied for disability so don't know much about the process, but I do know it's very common to be denied the first time, so if you go for it and get denied, appeal.

May 11, 2023

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