Remicade | myHSteam

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Remicade
A myHSteam Member asked a question 💭

I have been on Humira for two years and just found out that I have no top antibodies against it now my doctor wants me to go on Remicade(infliximab) infusions.
Anyone on this???

posted January 18, 2023
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A myHSteam Member

I feel your pain Mr Shane I've been on Humira for about a year now and same as you I've always had or have flares I really can't remember when I didn't have issues with HS flares 35+ years I've been dealing with this shit and I'm not sure if the Humira is working for me or not but I'm scared not to take it I've never noticed a real difference ne and my dermatologist have spoken about Remacide for means she told me the decision to take it would have to be my own she stressed to me there are a shit load of possible side effects that could come about using Remacide So in bit trying to persuade you one way or the other I'm just saying listen to your body because no one knows you better than you if you decide to go with the injections please let me know how it works out for you because the renicade infusions are still in my tool box I just don't know what I wanna do yet I know you know but this HS is a real pain in the everything so God bless you brother and take care of yourself 🙏

posted January 19, 2023
A myHSteam Member

Shane, the Mayo Clinic is one of the top clinics in the U.S. My Dermatologist is on top of the blood tests. She test my blood every few months. She told me on my last visit that if I catch a cold, I can skip the injection. Since being on Humira, I had about 3 flares. Most of the time, nothing. After two years, I wish it had worked for you. Since it didn't, I hope and pray the Remicade works. Be safe and be blessed.

posted January 18, 2023
A myHSteam Member

I don’t think it ever works for me for the past two years that I’ve been on it I’ve never had a day of relief I’m in a constant flare

posted January 18, 2023
A myHSteam Member

We're just to good looking huh Ms BonBon (love you stay sweet/cool 😎) unfortunately he is my HS brother

posted January 22, 2023
A myHSteam Member

Hugs to you too Shane, but you look alot alike!!!

posted January 19, 2023
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