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Maby some men go through it to but because it’s hard to explain to ppl or others a lot of ppl are not educated or know about HS or because how you may feel or look at yourself others may also look at you the same way the scars on your breast groan area your butt
Oh yea I’m sure! I was just giving advice on what I do or I’ve done which isn’t always easy
It's very hard. I just tell and send that person a pic and let a person know it's not contagious.
After my late husband, I have not had an intimate relationship because of fear, shame and anxiety. It’s been years and I’m so lonely. I don’t know how to move forward…
I fear that humiliation. I’m so sorry you have to go through this…
Be open and honest of what you have. I know it’s not easy. I know my husband and I haven’t in 1/2 a year and it’s been challenging for us. By the grace of God I had surgery in those areas bc we just… read more
Hi there! I am sorry that you are going through this. Don't feel alone. I've been single for 5 years as well and have a real hard time trying to explain the disease and or finding someone who actually… read more
Just wondering as I think I will forever be single 😞
Thanks so much for this
How is dating with HS. This started when I was 15-16 and I'm 28 now. It got really bad over the last two years and I am so self conscious about it
I've been with my partner since I was 16, I'm now 24
He's so caring and tries his best to help me whenever he can. Hates seeing me in pain and always offers to try help. It can be really… read more
Hi everyone. As we all know here, HS can cause a multitude of problems in so many categories. The one thing I'm curious to hear from others is this...how do you approach people you date (or potentially want to date) about your HS status? HS is not as well-known as many other skin diseases and disorders. I didn't even know what it was until my 50s if I'm being completely honest (and was lucky enough to get a good dermatologist who told me what it is)
I'll be blunt here. When intimacy becomes an… read more
My advice would be to judge how they are as a person. Are they empathic in general to people? If so, I would say they will be empathic to your flares and scaring.
If they comment on people’s… read more
I was lucky with my last girl friend... Well actually no I wasn't lol. But as far as HS is concerned I was, I didn't have any flare ups when I was with her, and if I had It wouldn't have been a big issue because we were both very open about our medical conditions and she had some physically embarrassing medical problems of her own.
But now I'm back to being worried that I might get a cyst at the base of the penis (has only happened a couple times but still) and be put in a situation where I… read more
I’m having a similar issue. I use bandages and try different positions. If it’s too inflamed I would wait a couple days and try again. My husband understand how painful sex can be but it’s hard… read more
I know this is probably a weird question... HS has always affected my relationships it’s always a personal problem. I have told two people about some of my issues that are rather unsightly in my underarm. One was totally okay, but the other not so much. I’m just wondering how do you guys deal in relationships? Does it ever get more comfortable or easier?
Not easier. I'm ashamed for my husband of 10 years to look at me. Especially when his face is close you know. Also, he got this problem where his balls swelled up bad and it was a side effect of a… read more
