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Doc Horror Stories! Anyone Else?
A myHSteam Member asked a question 💭

Today my heart was broke. I went to a 'new to me' dermatologist. I had my previous out of state records sent. My journal from my last two flare ups. And was ready to talk business. The doc selected 'Does HS studies/research'... I knew I just had to be in the right place
The 1st nurse was super nice listened, looked, took pics (i have has in my groin, so it is uncomfortable to show people). The PA, looked, heard me say the phrase HS, as I checked my dates on my journal she stood up and said Im… read more

posted December 16, 2020
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A myHSteam Member

WOW that is sad Crissy. It seems like that are wanting you to be a robot or an animal. I hate that you and many others get this kind of response. I say find another doctor for sure.

posted December 17, 2020
A myHSteam Member

Go find another dr

posted December 16, 2020
A myHSteam Member

This is terrible. I’m so sorry. Unfortunately, I’ve had the same. my (now ex) husband was military, so every 2-3 years I had to go and start all over with a new one and hope they wouldn’t try and pull the same BS.

I was on Humira for 8 years for my colitis....either it did nothing for my HS, or I’d HATE to see how it was off it.

I don’t remember how I found it, but for the past 18 months I’ve been taking Metformin. It’s usually for control of diabetes, but it’s been a MIRACLE for me. Link to a study below. ❤️❤️

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC47...

posted February 26, 2021
A myHSteam Member

I'm so sorry, it is so rare that they give any kind of pain med for HS since so many consider it "just a skin condition" :( Please check out the list of dermatologists on HSConnect.org and see if there is someone else near you who is recommended to us for HS. I'm sorry you had such a bad experience, they are most definitely not all created equal!

posted February 16, 2021
A myHSteam Member

Wow, so sorry to hear how unprofessional and just overall nasty they were to you. I hope you find another place and doctor!! You deserve better. Sending hugs 💞

posted February 2, 2021

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