Hidradenitis Suppurativa Questions and Answers | myHSteam

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Real members of myHSteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1802 questions
Has Anyone Tried Vicks On A Boil? Does It Work? Is It Safe To Use?
A myHSteam Member asked a question 💭
A myHSteam Member

It helps reduce the swelling upto an extent. But don't expect it to magically cure it.

posted April 29
How Do Any Of You Treat HS Nodules On Your Buttocks? I Feel Like I'm Sitting On Shards Of Glass.
A myHSteam Member asked a question 💭
A myHSteam Member

Oh my goodness! Our stories sound very similar. I had a Pilonidal Cyst removed from my buttocks in I believe 2014. It was the most excruciating pain I have ever been in.

I wasn't diagnosed with HS… read more

posted 5 days ago
What Do People Clean Their Lesions With When They Are Open, Ie Right After Eruption?
A myHSteam Member asked a question 💭
A myHSteam Member

I use Dove or Ivory soap. Something light

posted 14 hours ago
Hi All, Humira Or Infusions? Which Have You Had The Most Success With? Thanks, Thomas
A myHSteam Member asked a question 💭

Moderate to severe HS

A myHSteam Member

Hello Thomas,

Humira (adalimumab) is typically administered through subcutaneous injections, either every week or every other week after an initial loading dose. It is available as a single-dose… read more

posted April 27
How Do I Become Intimate With A Person With This Mess Of A Body?
A myHSteam Member asked a question 💭

After my late husband, I have not had an intimate relationship because of fear, shame and anxiety. It’s been years and I’m so lonely. I don’t know how to move forward…

A myHSteam Member

I fear that humiliation. I’m so sorry you have to go through this…

posted April 27
Does Anyone Use Humira To Help With HS? It Says Can Cause Cancer Is Why I'm Asking
A myHSteam Member asked a question 💭
A myHSteam Member

Yes, Humira (Adalimumab) is indeed used to help manage Hidradenitis Suppurativa (HS). It is the only biologic medication approved by the U.S. Food and Drug Administration (FDA) specifically for HS… read more

posted April 27
Hibiclens Use?
A myHSteam Member asked a question 💭

This will be the first time that I am using it what is the best recommended way to make sure I'm not using too much?🧐

A myHSteam Member

Doesn't work

posted 14 hours ago
Itching
A myHSteam Member asked a question 💭

Hi everyone, does anyone else get itching in spots that are not flaring? It’s been a few days and it’s awful. What do you do to get rid of it??

A myHSteam Member

Cortisone cream or an over the counter antihistamine

posted April 27
Does Anyone Else Have An Issue With Caffeine Causing Flare Ups?
A myHSteam Member asked a question 💭
A myHSteam Member

not me

posted April 29
Different Types Of Surgery For Under Arm?
A myHSteam Member asked a question 💭

I had a previous surgery under my arm. Which happens to be my first ever encounter with hs. But tbh I don't remember what I had done. Well anyway I'm going back in to have it looked at again. What is a surgery u have seen done a second go around. I think I had a deroofing? I'm trying to avoid having one surgery when it should have been something different the second time around if that makes sense. I have heard of instances where docs ( general surgeon) will do the simple less tedious surgery to… read more

A myHSteam Member

Well ms Coda let me start by saying I'm sorry that you have to go through this the HS and all but i promise i will never tell any lies on this web site because i love and respect this site to much… read more

posted April 26
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