Hidradenitis Suppurativa Questions and Answers | myHSteam

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1837 questions
Any Have Problems With Candida Or Blood Sugar?
A myHSteam Member asked a question 💭

Im trying to figure out "what" is causing my mast cells to be triggered & keeping this inflammatory nightmare going. I dont smoke, not obese but i DO have chronic pancreatitis. I read that insulin resistancy can play into HS. Ive also had a problem with candida which keeps mast cells inflaming everything. So im curious 'if' my long time gimpy pancreas has caused a blood sugar problem thats causing candida and HS?

A myHSteam Member

Thanks. I think the blood sugar is causing the candida. Which in turn keeps my mast cells triggered and causing constant inflammation. I want sure if anybody on here has candida issues as well?

posted May 5
Hi Anyone Tell Me Your Experience With Surgery? I Am Having Hard Time With This Blister Coming Again And Again In The Same Spot.
A myHSteam Member asked a question 💭

I am having HS boils in my breast. It heals for 2 days fills up again and then burst out. It's continously happening . I

A myHSteam Member

Surgery went well alot of draining after, healing good my A1c is low and that plays a big part in healing I haven't had any flare up in that area since Surgery Thank God. I ask my Dr about Vitamin D… read more

posted May 9
Breakout Or Whatever On Face? Just Curious
A myHSteam Member asked a question 💭

Looking for affordable but proven over the counter treatments others have used. I know everyone is different but has worked for you? 💖 Also bandage/dressing for the area? Cheek area specifically. Sorry to be bother and ask so many questions 😣😵‍💫

A myHSteam Member

Make your bandage. Get a paper towel (I use Costco brand) cotton ball in the middle, and I use paper tape (Amazon box of 12 forgot $) Vaseline so it won't stick to the skin. Good luck

posted May 9
I’ve Used Humira And Most Recently Remicade (IV Treatments) With Very Little Success. My Doctor Is Going To Try Cosentyx. Any Thoughts?
A myHSteam Member asked a question 💭
A myHSteam Member

This is exactly what has happened to me. Just took my 1st injection of cosentyx on Friday

posted April 29
Has Anyone Tried Vicks On A Boil? Does It Work? Is It Safe To Use?
A myHSteam Member asked a question 💭
A myHSteam Member

It helps reduce the swelling upto an extent. But don't expect it to magically cure it.

posted April 29
How Do Any Of You Treat HS Nodules On Your Buttocks? I Feel Like I'm Sitting On Shards Of Glass.
A myHSteam Member asked a question 💭
A myHSteam Member

Oh my goodness! Our stories sound very similar. I had a Pilonidal Cyst removed from my buttocks in I believe 2014. It was the most excruciating pain I have ever been in.

I wasn't diagnosed with HS… read more

posted May 4
What Do People Clean Their Lesions With When They Are Open, Ie Right After Eruption?
A myHSteam Member asked a question 💭
A myHSteam Member

I use Dove or Ivory soap. Something light

posted May 9
Hi All, Humira Or Infusions? Which Have You Had The Most Success With? Thanks, Thomas
A myHSteam Member asked a question 💭

Moderate to severe HS

A myHSteam Member

Hello Thomas,

Humira (adalimumab) is typically administered through subcutaneous injections, either every week or every other week after an initial loading dose. It is available as a single-dose… read more

posted April 27
How Do I Become Intimate With A Person With This Mess Of A Body?
A myHSteam Member asked a question 💭

After my late husband, I have not had an intimate relationship because of fear, shame and anxiety. It’s been years and I’m so lonely. I don’t know how to move forward…

A myHSteam Member

I fear that humiliation. I’m so sorry you have to go through this…

posted April 27
Does Anyone Use Humira To Help With HS? It Says Can Cause Cancer Is Why I'm Asking
A myHSteam Member asked a question 💭
A myHSteam Member

Yes, Humira (Adalimumab) is indeed used to help manage Hidradenitis Suppurativa (HS). It is the only biologic medication approved by the U.S. Food and Drug Administration (FDA) specifically for HS… read more

posted April 27
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