Prescribed Pain Medication and hidradenitis suppurativa | myHSteam

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A myHSteam Member asked a question đź’­

Okay so how does HS work. Does it progressively get into worse stages or can it be prevented or is it stationary in one stage

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A myHSteam Member
What Pain Medications Are You Prescribed And How Often?
A myHSteam Member asked a question đź’­

How do you deal with the pain? What pain medications do you take? Do you get narcotics? For how long do the Dr's give them to you?Is it hard to get them to prescribe it to you? Which dr prescribe it?

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A myHSteam Member

I'm on a biologic called ' Amgevita' Stacie, which I take in epi- pen form once a week. Also use pain killers daily but really try to stay focused on being active & breathing well, which I find really… read more

Humira Treatment
A myHSteam Member asked a question đź’­

Is or has anyone used the humira treatment and how was the results? Drs wanted me to try it a few years back but it was super expensive even though they had programs that would help the cost and I was worried about the warning about lung issues because my family has lung problems on both sides. I would be interested in anyones results with this treatment and also how hard was it to set up the programs that help pay for it and was it still expensive in the end?? Thanks in advance for any… read more

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A myHSteam Member

I was on Humira for almost 2 years and saved $$ by going through the Abbie site for discount coupons. I stopped when I started getting bacteria infections from "normal bacteria " our bodies have but… read more

Has Anyone Had Any Problems Getting Pain Med From Their Dermatologist I Having A Bad Flare I'm Also Seeing A Wound Doctor
A myHSteam Member asked a question đź’­

I take 800 ibuprofen but my dermatologist won't prescribe anything higher

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A myHSteam Member

My dermatologist prescribed me Tramadol and Prednisone to help me with pain right before my surgery in September. It took some of the edge off, but the pain was still there.

Has Anyone Been Prescribed Remicade? If So, Have You Noticed Any Change. My Dermatologist Is A Humira Guy And Won't Prescribe It. Thanks!!
A myHSteam Member asked a question đź’­
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A myHSteam Member

Hi that good news my dr wants to Starr me on Remicade waiting for insurance to approve. I was wondering if you have any side effects?

Pain
A myHSteam Member asked a question đź’­

How do you deal with the pain

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A myHSteam Member

I have had to go to and receive care from pain management clinics it's been hard to find the right one who believes in HS and understand how painful this disease is but unfortunately in my case my… read more

Doc Horror Stories! Anyone Else?
A myHSteam Member asked a question đź’­

Today my heart was broke. I went to a 'new to me' dermatologist. I had my previous out of state records sent. My journal from my last two flare ups. And was ready to talk business. The doc selected 'Does HS studies/research'... I knew I just had to be in the right place
The 1st nurse was super nice listened, looked, took pics (i have has in my groin, so it is uncomfortable to show people). The PA, looked, heard me say the phrase HS, as I checked my dates on my journal she stood up and said Im… read more

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A myHSteam Member

I feel your pain I was on Humira for two years before anybody did bloodwork to find out that I was or my body build up antibodies so it wasn’t doing anything they put me on Remicade and it’s still has… read more

Anyone Dealing With Mental Health Issues?
A myHSteam Member asked a question đź’­

I would love to talk about how this affects us mentally if anyone would like to chime in that would be great

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A myHSteam Member

Percocet.

Anyone Else Have Oral And Topical Antibiotics But Still Have Open Draining Cysts For More Than 5+ Months? #somuchpain
A myHSteam Member asked a question đź’­
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A myHSteam Member

Seems we are not alone in suffering this disease…

I’m Getting A “de Roofing” Procedure (surgical Removal Of HS Problem Areas) In The Groin Area. If You’ve Had This Done I’d Love Your Advice.
A myHSteam Member asked a question đź’­

I’ve never had HS surgically removed before and I’m VERY nervous and anxious about it. I want to know what to expect so I can be prepared.

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A myHSteam Member

I had it under my breath and arm. I had gotten a infection and went back had surgery to get it out. But it healed nicely no flared under the breast or underarm on that side.