Oral corticosteroids and hidradenitis suppurativa | myHSteam

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Help With Hs As A Type 1 Diabetic
A myHSteam Member asked a question 💭

My mother use to call these fat bumps, boy was she wrong. After having back surgery, I discovered that my pancreas was nicked and I became a type 1 diabetic. There are times when my blood sugar drops and I will be sweating, I have woken up numerous times overheated and sweaty. How do I get help with this? Any suggestions? I was in the hospital in DKA and saw a commercial for HS and realized that that was what I had been dealing with. When I brought it up to my doctor, he basically said ok… read more

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A myHSteam Member

Managing both hidradenitis suppurativa (HS) and type 1 diabetes can be challenging, but here are some strategies that might help:

1. Medication Management: Since insulin is essential for type 1… read more

How Do You Deal With The Pain When In Arm Pit
A myHSteam Member asked a question 💭
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A myHSteam Member

Good morning I take naproxen 500 mg twice a day & warm compress when armpits flare ups or infected. I stop taking doxycline capsules for inflammation because the costicosteroids inyections is… read more

Anyone Else Have Oral And Topical Antibiotics But Still Have Open Draining Cysts For More Than 5+ Months? #somuchpain
A myHSteam Member asked a question 💭
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A myHSteam Member

Seems we are not alone in suffering this disease…

Does Having HS Cause Your Hair To Fall Out?
A myHSteam Member asked a question 💭

I've noticed my hair has been getting thinner and thinner and I shed as bad as the dogs do LOL

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A myHSteam Member

I don't know.... I haven't had an issue with that

What’s The Longest Flare You’ve Ever Had?
A myHSteam Member asked a question 💭

My current flare is my longest ongoing one at five months. How long do you guys flare for?

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A myHSteam Member

I am in stage 3 so they last for months.

Has Anyone Tried Metformin, Spironolactone, Or Minocycline? I Was Prescribed Those 3 Today For The First Time.
A myHSteam Member asked a question 💭
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A myHSteam Member

Yep, that's the worst time for me too. I hope that combo works for you. My side effects were horrible. Best of luck to you!💓

Is There Any Over The Counter Oral/tropical Medication And Body Wash That You Can Use For HS?
A myHSteam Member asked a question 💭
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A myHSteam Member

And I regularly shave most of my body hair to keep the hair follicles as tightly closed as possible to prevent flare-ups.

How Does Taking Doxycycline Make You Feel?
A myHSteam Member asked a question 💭

I seen the surgeon yesterday. He referred me to derm. But in the meantime he started me on daily doxycycline . I've taken it in past but just a the usual short dose. Not sure when Derm will be because the referral just got sent yesterday.

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A myHSteam Member

I took it for about 6 months....3 times a day. Gave me diarrhea and did not help my HS at all. Doctor wanted me to keep taking it but I declined...after about a year, he started me on some other meds

Has Anyone Developed Ha In Their 60’s? I’m 66 Just, And Have Had These Symptoms For 5 Months. Never Before.
A myHSteam Member asked a question 💭
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A myHSteam Member

I've seen where people have recommended and sworn by organic cold compressed castor oil. Others have recommended manuka honey.

Does Anyone Else Use All Natural Methods For Treating And Staving Off Flare Ups?
A myHSteam Member asked a question 💭

No prescriptions oral or topical just natural products and diet.

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A myHSteam Member

I used a honey based ointment to treat burns on my wife never thought to use it on my flares... Thanks for the tip!!!