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Seems we are not alone in suffering this disease…
I have mild stage 1, I’ve been on a 2 month treatment plan of clindamycin and rifampicin. The initial month I saw no difference, but the second month has been great - no irritation, no soreness, life back to normal.
As I’ve been on antibiotics since August, derm is trialling me coming off antibiotics and has given me back up prescription of clindamycin and rifampicin as this duo seem to work. I am getting laser hair removal starting next week (hopefully if hair isn’t too fair), and I have… read more
I’m happy for you!! I hope yours stays in remission too, I’m glad to hear you’ve been fine so far :) been on antibiotics since January so I’m hoping to try a break soon but do feel really grateful… read more
And I regularly shave most of my body hair to keep the hair follicles as tightly closed as possible to prevent flare-ups.
I seen the surgeon yesterday. He referred me to derm. But in the meantime he started me on daily doxycycline . I've taken it in past but just a the usual short dose. Not sure when Derm will be because the referral just got sent yesterday.
I took it for about 6 months....3 times a day. Gave me diarrhea and did not help my HS at all. Doctor wanted me to keep taking it but I declined...after about a year, he started me on some other meds
I've seen where people have recommended and sworn by organic cold compressed castor oil. Others have recommended manuka honey.
No prescriptions oral or topical just natural products and diet.
I used a honey based ointment to treat burns on my wife never thought to use it on my flares... Thanks for the tip!!!
I was diagnosed with a severe case of HS last week. I’m on oral doxycycline, topical clindamycin, and an acne wash. However I’m not and never have been a smoker or overweight. I’ve actually spent most of my adult years underweight from an eating disorder. I’m doing better now with the ED as I’ve just had a baby in September. I’m wondeting if the HS onset could be caused by hormonal birth control. I have the kyleena IUD
I'm not
I have a sore that is currently flaring in my bikini line, I cannot inject it with the kenalog for another 2.5 weeks - this is what usually works best for me. I tried the Vicks idea, resorcinol cream, and heat pack. Nothing is working this time! Any help would be greatly appreciated!
I am starting simlandi today but I need some relief now
I hope you feel better soon. x
I have stage 3 and have had many surgeries, the last I 2016. I was mostly flare free after that until about a year ago, so now trying humeria. Any input would help.😊
I'm just praying that this will help. I'm not sure what to expect or a timeframe, guess my Dr. will let me know
I am in my last trimester of my pregnancy and my HS has NEVER flared this bad. I currently have 4 active flares in my groin/private area. This is my first pregnancy and it’s already so hard to find confidence but this is making everything worse! Any ideas for treatment are appreciated!!
