Some people believe that HS is contagious skin disease or think it's some form of STD , so what information would you like to give to people about HS and about living with HS?
That it is due to uncleanness. I believe that is the reason it has been covered up for so long. People on here have had this thing for 40 years.
So I have a question...does HS come on your back? Some days ago I have notice what I thought was a pimple...but this is no pimple..on the middle of nyt back on the spine. It was small ..but it grew in size. No pain to it. Just sometimes feel itchy. Been putting some warm compresses on it. Can't even see it myself unless I get one of my kids to take a picture of it. That is how I knew it has grown in size plus feeling it. I don't dare to try to squeeze it. Am scared. .I heard HS forming on your… read more
Yes. It can appear just about anywhere
I lose and gain, lose and gain. I just lost 6 lbs. But last 3 days been on an eating bender I guess because it is a holiday. Everything is closed so I stocked up on lots of food which began to tempt me. Once I had chips and pie I just blew it bad. I never keep those things in the house normally. I feel like I need an appetite suppressant. I was skinny for years and years taking Dexatrim over the counter appetite suppressant that had caffeine in it and an antihistamine. But it caused strokes in… read more
I've been so excited for months last 9 months as soon as campaign with child cancer I'm trying to get people to sign so you start realizing child cancer is probably the most devastating thing but… read more
How should I go about losing weight when exercising might cause flare ups ? I definitely should eat better but what if I want to be active ? Any recommendations ? Thank you
I'm doing the Mediterranean diet I have lost 35lb try it very filling and good
This app has really inspired me and wanting to do more and getting the word out and more people will not have to deal with this disease alone, and more Dr.s. will need / want to learn more about it so they will be forced to help us with a cure or a way to make us more comfortable and for us to deal with this evil disease. Let's discuss. Blessings
Sign me up friend
I tried for about 6 months. Cut many things adverse to HS but the sugar part is hard. After research I have found that a diet will improve your health in every area, there is nothing scientifically… read more
Dr. Kimball mentioned Hormonal Treatment for HS instead of Antibiotics. Would Hormonal Treatments be recommended for older ladies or for men?
Fatima, Do not know the answer. I took Vivelle patches till age 50 after my hysterectomy. It might would help. My h.s. was not as bad while on them.
Hi everyone my hs is really bad just now, does anyone have memory issues when they have flare ups?
Not yet. Look up Practice Update. It's free to join and there's a lot of information on that site.
Hi! I’ve had HS for around 4 years and in December I will be having gastric sleeve surgery. I know it’s not completely related, but has anyone had an experience of losing a lot of weight and an affect this could have on hidradenitis?
You are correct. Whenever you have a flare-up, try acidic foods to counter such as pickles, olives, or vinegar gummies.