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Catch up on the latest updates, events, and voices of others living with hidradenitis suppurativa.
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What Jackson Gillies' HS Diagnosis Does for the Rest of Us

What Jackson Gillies' HS Diagnosis Does for the Rest of Us

When American Idol contestant Jackson Gillies revealed he has hidradenitis suppurativa while presenting at a TED Talk, a wave of empathy and validation washed over the HS community. “Wow. Even him, too?”Gillies is actively combating the stigma of...
Posted 06/12/2019
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Say "No" by Saying "Yes" to Something Else

Say "No" by Saying "Yes" to Something Else

Saying "no" with grace and honesty can be challenging. Sometimes our fear of ending a conversation awkwardly or letting a friend or relative down can nudge us into saying "yes" to things that are difficult for us. When managing a chronic...
Posted 06/05/2019
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Putting Yourself First

Putting Yourself First

Have you ever put someone’s else’s needs ahead of your own? We all do it - we’re human, after all. There is a name for this generous tendency. Economists refer to this situation, when one person's well-being cannot be improved without making...
Posted 05/16/2019
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Are You Afraid to Say No?

Are You Afraid to Say No?

Yes. No. I mean – maybe? Well, okay. Have you ever wanted to be able to say "no" without feeling guilty? Without feeling you're letting someone down? Many of us struggle with disappointing anyone with a 'no.' At the same time, those two letters,...
Posted 05/01/2019

Getting Started on myHSteam

Getting Started on myHSteam

Maximize myHSteam by sharing a little bit about yourself. This article will help you get started meeting great people on myHSteam. When making new connections and fostering friendships, it’s always useful to start with oneself.Begin with you....
Posted 03/27/2019
myHSteam My hidradenitis suppurativa Team

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