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Catch up on the latest updates, events, and voices of others living with hidradenitis suppurativa.
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Tap Into the Power of Directness: Use "I"

Tap Into the Power of Directness: Use "I"

Living with hidradenitis suppurativa (HS) can mean having limited energy, time, and bandwidth. You may find yourself needing to say "no" more often than you did before you developed HS. Do you have a tough time being direct with others about how...
Posted 08/15/2019
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Patience: Accepting That Control Requires Self-Care

Patience: Accepting That Control Requires Self-Care

"A waiting person is a patient person." - Henri J.M. NouwenArgh! Have you ever felt impatient at a red light, or irritated by the appearance of a flare up? You're not alone.Patience can feel scarce when you don't have control over a situation. It...
Posted 07/17/2019
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Ready To Stop Judging Yourself?

Ready To Stop Judging Yourself?

"I was tired of hearing my harshest critic, the little voice in my head, so I became more kind to myself." -Member of myHSteamYou may judge yourself and others every day without realizing it. Like many members of myHSteam living with hidradenitis...
Posted 07/16/2019
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Who's the One Person You Should Always Keep Your Promise To?

Who's the One Person You Should Always Keep Your Promise To?

Keeping promises to yourself is a way to focus on self-nurture. This could mean making a commitment to "you" time on a regular basis to tend to yourself. Keep a regular date with yourself to focus on whatever helps you feel calm and centered in...
Posted 07/16/2019
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Being Yourself Is More Than Enough

Being Yourself Is More Than Enough

"After years of feeling like I need to be better, stronger, healthier, and in control, I now know I am enough."- Member of myHSteamMembers of myHSteam experience the burden of hidradenitis suppurativa physically, emotionally, and psychologically....
Posted 07/11/2019
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The Power of Letting Go of What You Can't Control

The Power of Letting Go of What You Can't Control

"Life is too short. I can't control everything in my life. Trying to is exhausting!!"- member of myHSteamWhen first faced with a hidradenitis suppurativa diagnosis, a common fear is a lack of control over our health. How could our bodies betray...
Posted 07/09/2019
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Beginner's Mind - Not Knowing It All When Living With Hidradenitis Suppurativa

Beginner's Mind - Not Knowing It All When Living With Hidradenitis Suppurativa

"The complexities of this condition make me want to read everyone's comments as I learn more and more. The truth is I know enough not to realize how very little I know."- Member of myHSteamLiving with HS can be difficult and even a burden, but...
Posted 07/03/2019
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The Importance of Trusting Yourself

The Importance of Trusting Yourself

Studies have shown that the more we take ownership of our condition, the more engaged we are in maintaining behaviors that help us live better. An important factor in having the confidence to take this ownership is self-trust."If something doesn't...
Posted 07/02/2019
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Acceptance: Realigning Expectations and Extending Grace to Ourselves

Acceptance: Realigning Expectations and Extending Grace to Ourselves

"But that's not the way it's supposed to be!" is a common thing we say when our expectations fall short. It happens to all of us. Some members of myHSteam have found the practice of "allowing and letting be" in the midst of a trying time to be a...
Posted 06/27/2019
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Telling White Lies

Telling White Lies

Have you ever told a white lie to be kind, to protect the feelings of others, or maybe to simply avoid stigma? You're not alone.For some living with a chronic condition, telling a white lie can be a way to save one's strength. Sometimes it's...
Posted 06/26/2019
myHSteam My hidradenitis suppurativa Team

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