I had a bra that had a wire that was rubbing my underarm all day, by the next morning, in the exact spot, there was a cyst so bad I can't put my arm down. Is this common? Does this happen to anyone else?
I was also diagnosed with PTSD and depression from having HS! Iāve been in therapy and see a psychiatrist over 12 years! ! Got approved immediately for permanent disability based primarily on theā¦ read more
So I can't take Humira because I'm already on a biologic for Rheumatoid Arthritis. I have 2 very bad HS tracks that just keep filling up, bursting and starting all over again. I went to the urgent care 2 days ago because one was in so much pain. I'm now on antibiotics and the Dr suggested surgery to have the track removed. Has anyone had this done and does it come back or is it gone forever? Appreciate all the help I can get. Really hate HS!!
I just had surgery done on my breast they removed central Duct and I hope I never have one there again. They removed a lot of meat and tissue. I have a tube to catch all the fluid now. I have picturesā¦ read more
HS stage 3
I had both my armpits done like 10 yrs ago doc removed sweat glands. Have new Doctor now and it needs to be dug out again the hardest part is repacking after. You have to repack everyday or everyā¦ read more
Depends on how extensive it is
HS is still a new diagnosis to me and my specialist is not give me many answers to my questions. I typically get the responses āthereās no clinical evidence or studiesā, āI donāt know, I just go off of what the patients tell meā.
So I have been on minocycline for 3 months and has not done much for me. Iāve had 1 de roofing and another set for April. I have always lived a healthy lifestyle but am working on making changes. I am using resorcinol cream but have no idea what itās supposed to doā¦ read more
You will hear this often, but there is no single treatment that works for everyone. Because, itās true. HS is poorly understood and understudied. I believe the root cause for me is hormonal. My dermā¦ read more
Hello everyone! We know HS smells lol. Iāve found you are what you eat! Going plant base has helped tremendously with my smell, but recently I couldnāt shake the pungent smell. My friend told me about chlorophyll internal deodorizer and it works! I took it last night and this morning and I donāt smell lol! Maybe should try it? Got it from vitamin shop and itās on Amazon too!
Thanks for sending me a hug, here's a hug to you in return.
My dermatologist had mentioned a surgery called (Unroofing) that one of her colleagues were starting to do with people who suffer with HS she spoke to her colleague to see if I would be suitable for this procedure unfortunately he said the area's I have would be to large to do at this time so has anyone had this procedure or know anything about it ( if so please leave a response) To my next question has anyone had the Infusion: Inflixinab (Remicaid) generic Brand Had these infusions done orā¦ read more
I had my first de roofing in the groin area done in November of last year and have scheduled 2 more since then because of tunneling that opens through the skin. If you get regular flares or openā¦ read more
I was told years ago this was a really bad practice and shouldn't be done. I saw one of the top hs specialist (Dr Jan van de verth??? Forgotten his name due to too much weed!šµ) I remember cost though...Ā£180 for half hour appointment. I believe this is still happening in UK. I requested for it not to be done on one op but they did it anyway saying they knew better.
You too lindsey, nice to talk and good luck to you x
Does anyone else suffer with boils on their face?
I get flare ups often, they are really angry and cause my face to swell really bad.
Iāve had 3 in a row last few months.
Not been properly diagnosed but, was offered surgery a long time ago on my groin area. Refused as it was so invasive.
My mum also has this condition.
Is it worth going back to doctors? Referral time in the UK can take ages to see a dermatologist.
Help and advice would be much appreciated. ā¤ļø
Don't touch it. Do deep breathing. Try a 3 day water fast with alkaline water and key vitamins. Take cold showers only. The only thing you should put in hot water is your hands. The breathing and hotā¦ read more